My son is 11 months old and has a hearing issue. He was born at 31 weeks gestation with the cord around his neck 6 times. He has been in developmental therapy since 2 months of age and then started occupational therapy when he was 7 months old. When he was 4 months old his opthamologist thought he had cortical visual impairment because he was not tracking and refered us to a neurologist. The neurologist told us that his eyes were fine (he started tracking before the appointment) and said the problem was that Ashtyn was not hearing adequatly. So he scheduled an MRI and EEG a BAER and all kinds of blood/genetic tests. Everything came back normal except the MRI which showed slight damage in the area of the brain that causes a person to visually neglect things. SO....his neurologist disagreed with the BAER that said his hearing was normal and refered us to the University of Michigan. They saw him and said there is clearly a hearing issue. Well we have another BAER scheduled at the end of this month and we are hoping it tells us something. We know there is a hearing problem because sometimes I can say ashtyns name and he will look right at me and other times I can yell scream bang things together slam doors and make very LOUD noise and he doesnt show a bit of response it is like he is in his own world. So finally the neurologist decided it is central auditory neglect where you can't localize sounds and therefore you ignore them...which sounds like EXACTLY what ashtyn does. If he is looking at something there is no sound in the world that will get his attention. Here is my problem though....I have NO way to communicate "hot" or "no" or things that an 11 month old should start learning. He completely ignores my commands and I have NO idea what to do! I want to get him into Oral Deaf Education but I live in a small town in Michigan. What can I do to help a child with auditory neglect function and understand???
2015-02-05 10:37:09
Hello
what a frustrating situation! The first thing that comes to mind is that when you obtain the results of the second BAER test I recommend you take all of your reports and records to a developmental pediatrician or pediatric neuropsycholgist for a consultation. Your pediatrician should be able to make a referral for you. You need a professional who can look at all these data ob
2015-02-05 10:37:39
